M.E.

The Never-Ending Tight Rope that is Pacing- Mental Health and Chronic Illness- A Balance

A polaroid style photo of Amber smiling on the beach is captioned with the text " The Never-Ending Tight Rope that is Pacing- Mental Health and Chronic Illness- A Balance". It is on a blue background with purple shapes.

By Amber Daw Listen here: https://open.spotify.com/episode/3i7twTbDNj4kbnzwmrrRIl?si=2c94602ed429413a This month has had ME and Fibromyalgia Awareness Weeks, as well as Mental Health Awareness Week. It’s been a week centred around raising awareness, starting conversations and sharing experiences with all of these things, considering their complexity and the ways that they infiltrate every aspect of the lives of …

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Revisiting Pacing: symptom management for chronic illness

Sakara, a young women wearing a pink fleecy and a cap is sat smiling in her piink wheeled wheel chair. Below this photo is the text " Revisiting Pacing: symptom management for chronic illness, by sakara dee". This polaroid style photo and text is backed against a light blue background with a big purple and green shape.

By Sakara Dee Listen here: https://open.spotify.com/episode/4f4qxjUjEbplo0GiGryufR?si=233d5bb22e7f49da Hello, I’m Sakara. Today I’m sharing my thoughts on and experiences with the symptom management technique, “Pacing”. I’m a 21 year old musician and freelance assistant, disabled though M.E. and other energy-limiting chronic illnesses. My relationship with “pacing” is a tumultuous one, but I’ll tell you more about that …

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Being Part Time in Education

The image is an infographic with colourful blue and green rectangles in the background. In the foreground there is a photo of Amber, sat cross legged wearing a red top that says #millionsmissing. Below is the writing (in white) that says “Being part time in education, by Amber Carey-Daw” In the top righthand corner is the LUNA project logo and and the text (in black) “A LUNA project series on Education”. End of description. 

Updated: Jan 19, 2022 By Amber Carey-Daw Listen to this blog here: https://open.spotify.com/episode/4Ez99kUEFgKrZa6bhS5XqD?si=9eae5614c6844fc3 I originally became a part time student in April 2018, just three weeks before the start of my GCSE exams. It wasn’t an easy decision to make, as many told me it would be detrimental to my exam results, something that as …

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