By Mizz Buchanan (she/her), 19 Listen to it here: https://open.spotify.com/episode/5njPUpgNjLwpBql63V7cnf?si=56b1cc860a474aac What I Have Lost: Independence. Happiness. Sleep (lots of it). Friends, old and new. Security. Innocence. A feeling of self-worth. Trust (in myself). Time. So much time spent worrying about what was wrong with me, or whether anything was at all. Time in hospital. Time …
By Heather (she/her) Listen to it here: https://open.spotify.com/episode/5U0hY5M7zPEYzFfqEJIZMS?si=6b5aa64ce1c64854 Hi, Heather here. This week we are all talking about what we have lost and gained through our experiences of ill health. Some of these might be focussed on positive life choices, but not mine. Background I was diagnosed with Lupus (SLE) almost exactly 7 years ago …
By Jack (he/him), 19 Listen to it here: https://open.spotify.com/episode/1zY66CXOji4gpnaNdNXKg0?si=3cf8256da18d4951 What I’ve lost: independence. The ability to do something for myself. Yes I can still wash. Yes I can still dry but no I can’t cook my own meals and walk a few steps without falling. Spontaneity. Everything I do has to be planned,prepared and executed …
By Kitty (she/her), 20 When I hear loss and gain I think more about sacrifices I have to make and how my experiences have changed my personality. When I was first diagnosed, it was all a bit dramatic and it wasn’t clear what my life would be like so at that stage, I hadn’t gained …
By Ross (he/they), 20 Listen to it here: https://open.spotify.com/episode/0n21OTO6NgO4XdE6yJYu1m?si=d34a84f8ae604c23 When answering ‘what have I lost or gained because of disability?’ is difficult because I don’t have one. I have not had to deal with the struggles of diagnosis, hospital stays, and always putting my health before everything else – it hasn’t been central to my …
By Ally (she/her), 19 You can listen to it here: https://open.spotify.com/episode/2AoKwfGWkohH7q0W8bocFV?si=e967735cce1f4928 I think that a year ago, if you had asked what I had lost and gained I would have struggled to think of what I had gained, and two years ago I would wonder why you were even asking. Now though, I feel able …
By Beth (she/her), 20 Listen to it here: https://open.spotify.com/episode/3ewwYrpaxo9hN2AuL0U1Zj?si=f6fa584744af435a Having a long term chronic illness can result in feeling like you are ‘ losing’ lots of things. Being diagnosed at a young age perhaps lessens these feelings; growing up you only pick the things which you are capable of. For instance, I never really have …
by Jenny Barron (she/her), 22 You can listen to this here: https://open.spotify.com/episode/5wemmePztIhPbhl2yZ3oL2?si=27c149f730e94564 When I got diagnosed it felt like I had gained this huge weight of responsibility, like I had this massive load to carry around with me at all times. Luckily with Type One diabetes the advancement of the medication meant that it can …
By Jack Scofield (he/him) P.E. two letters in succession which fill most able bodied people with dread. But those with physical disabilities a whole wave of emotions flood them. Hi, I’m Jack. I’m a part time – full time wheelchair user and have been since the age of 7. When I was in primary school …